Jameela Jamil shows off her ‘elastic’ skin as she battles with Ehlers-Danlos syndrome

The Good Place actress is raising awareness for her rare condition
Jameela Jamil hEDS diagnosis
Jameela Jamil reveals her ‘elastic skin’ from health battle
Jameela Jamil/TikTok
Dominique Hines28 December 2022
The Weekender

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Jameela Jamil has opened up about her battle with rare condition Ehlers-Danlos syndrome.

On Tuesday, the actress and media personality posted a video of herself on Instagram showing off the "elasticity" in her face - a symptom of the disease, which affects the body’s connective tissue.

As she pulled at her cheeks, Jamil, 36, said: "Hi look at this, Jesus Christ, this is not an app or filter.

"It’s my face, look at how elastic that is.

"The reason it’s so elastic is because I have EDS, I have HEDS three, the H because I’m so hyper mobile," she explained.

"The joints, nothing bends the right way, everything bends the wrong way. I want to talk about it despite the fact people like to make fun of me because of my health," she continued.

"It’s a serious condition and affects every part of your body and your mind and it’s a dangerous thing to have if you don’t know you have it."

The star, who has previously been trolled for speaking about her health, went on to reveal that she manages her symptoms by refraining from lifestyle choices such as drinking and smoking.

ELLE's 29th Annual Women In Hollywood Celebration Presented By Ralph Lauren, Amyris And Lexus - Arrivals
Jamil, at ELLE's 29th Annual Women in Hollywood celebration, has previously been trolled after detailing her many health issues
Getty Images for ELLE

She said: "The way it affects bruising, bleeding, healing, if you want to have a baby... I don’t drink, smoke, do drugs.

"I’m worried at the fact I’m disadvantaged with my health, it means you dislocate, your teeth are harder to work on, your struggles with migraines, random allergies."

Jamil explained that she wanted to raise awareness in a bid to help others.

"I’m not a doctor but that’s why I want you to go to a doctor... if you’re struggling with your joints and accidents all the time, please look at the symptoms.

Jamil and her British musician boyfriend James Blake, who often comes to her defence when she’ds trolled over her health struggles online
AFP via Getty Images

"It really can save your life. The people who have it really look well. I love you, I’m with you, go get checked!"

Ehlers-Danlos syndrome is the name for a group of rare inherited conditions that affects the body’s connective tissue.

For some the condition is relatively mild, while for others the symptoms can be debilitating.

In the past Jamil has defended her list of health conditions after being accused of having Munchausen’s syndrome by a troll.

She tweeted at the time: "I’m tired of the bullying, the taunting over my mental and physical health."

Munchausen’s is a rare psychological and behavioural condition in which somebody fabricates or induces symptoms of illness in themselves.

In the past, the actress has shared that she was partially deaf as a child, had "cancer twice", and been wheelchair bound after two car accidents.

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